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12.1 Council for Voluntary Service (CVS)
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| What is a Self-Help Group? |
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A Self-Help Group consists of people who have personal experiences of a similar problem or life situation, either directly or through their family or friends.
Sharing experiences enables them to give each other a unique quality of mutual support. They are able to exchange practical information and find ways of coping. Groups are run FOR and BY their members. Advice and Support: Do you feel isolated? Would you like to talk to others who share a similar experience? Are you involved in a Self-Help Group? Are you thinking of setting up a Self-Help Group?
Doncaster CVS has a Self-Help Development Worker who can offer advice and support with: Getting a group started Publicity, leaflets and posters Organising the group Training needs Ideas about sources of funding Forming a committee Drafting a constitution Contacts/links to other self-help groups and organistions General information
For more information or a start-up pack, contact Doncaster CVS on the number below.
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Doncaster CVS
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5-6 Trafford Court Doncaster DN1 1PN
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(01302) 343300
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The directory is also available online at www.doncastercvs.org.uk (Also see sections 8.1 & 9.2)
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12.2 Support Groups
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Contact a Family is a charity that provides support and advice to parents, whatever their child's medical condition. It has details of national support groups for most childhood disabilities and health conditions, as well as information on over 1,000 rare disorders and can often put families in touch with others in a similar situation.
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Contact a Family
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209-211 City Road London EC1V 1JN
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Helpline 0808 808 3555 (Freephone)
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www.cafamily.org.uk (Also see sections 2.1, 8.1 & 14.1)
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Doncaster Child Health Information Centre (CHIC) (see sections 1.3 and 8.1) has information on local and national support groups for most childhood illnesses and disabilities, as does Doncaster Health Focus (see section 8.1).
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ADD/ ADHD
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ADDISS
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2nd Floor, Premier House 112 Station Road Edgeware HA8 7BJ
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020 8952 2800
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info@addiss.co.uk
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www.addiss.co.uk
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Allergies
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Allergy UK
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3 White Oak Square London Road Swanley Kent BR8 7AG
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(01322) 619898
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info@allergyuk.org
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www.allergyuk.org
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Asthma
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Asthma UK Adviceline
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08457 01 02 03 (Mon - Fri, 9am - 5pm)
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Use the enquiry form on the website
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www.asthma.org.uk
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Autism
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National
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The National Autistic Society 393 City Road London EC1V 1NG
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Helpline 0845 070 4004 (Monday - Friday, 10am - 4pm)
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Minicom 0845 070 4003
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autismhelpline@nas.org.uk
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www.autism.org.uk
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Local Autism Support Group, Doncaster, is a parent support group that offers advice to parents and carers of autistic children. Meets 1st Tuesday of the month at The Park Hotel, Carr House Road, Doncaster.
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Autism Support Group Mr P. Gittings 7 Yew Tree Crescent Rossington Doncaster DN11 0EJ
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(01302) 868396
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gittingspaul@aol.com
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Little Rainbows Autism Group is a group for families of young children with autism and their siblings. It provides a safe environment for children to play while parents and carers can meet and chat. Currently holds sessions at Wheatley Children's Centre and organises activities during school holidays.
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Doncaster Autistic Society is a parent support groups that provides advice and support to families affected by autistic spectrum disorders. All family members are welcome. The groups organise regular get-togethers, events and family outings. Meets on the 2nd Tuesday of the month, usually term-time only.
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Doncaster Autistic Society
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PO Box 792 Doncaster DN2 5WT
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07896190495
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donautsoc@tiscali.co.uk
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ASD Home / School Liaiason Worker
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Service for Children with ASD Carr House Centre Danum Road Doncaster DN5 5HF
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(01302) 734838
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asdteam@doncaster.gov.uk
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Thorne House 5-13 Project is a group run for children aged 5 -13 years with autism. The group organises lots of activities and trips and runs an after school club. Groups are held on Tuesday and Wednesday evenings (term-time only). There is also support for the whole family and home visits can be arranged (see section 9.2).
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Vicki Macphee
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Thorne House Services for Autism
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(01405) 81 77 17
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Bereavement
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Local
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New Life Support Group Mr & Mrs P Finch 276 Carr House Road Sandy Lane Belle Vue Doncaster DN4 5DS
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(01302) 328861
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National
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Winston's Wish The Clara Burgess Centre Bayshill Road Cheltenham Gloucestershire GL50 3AW
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08452 030405
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info@winstonswish.org.uk
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www.winstonswish.org.uk
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Brain Injury
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National
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Brain Injury Rehabilitation Trust First Floor 32 Market Place Burgess Hill West Sussex RH15 9NP
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(01444) 258377
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www.birt.co.uk See also Head Injury
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British Institute for Brain Injured Children (BIBIC)
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Knowles Hall Bridgewater Somerset TA7 8PJ
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(01278) 684060
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info@bibc.org.uk
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www.bibic.org.uk
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Local
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Lousie Jenkins Headway Doncaster Doncaster Disability Resource Centre Sovereign House Heaven's Walk Doncaster DN4 5HZ
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(01302) 556277
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Cancer
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For information and support from specialist nurses call CancerBACUP free on:
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0808 800 1234
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National
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Children's Leukaemia and Cancer Support (CLACS) 18 Frederic Avenue Heanor Derbyshire DE75 7DG
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(01773) 762748
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Sargent Cancer Care for Children Griffin House 161 Hammersmith Road London W6 8SG
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020 8752 2800
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020 8752 2806
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care@sargent.org
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www.clicsargent.org.uk
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Local
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Cancer Support Group Doncaster c/o Janet Ryles Doncaster Royal Infirmary Armthorpe Road Doncaster DN2 5LT
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(01302) 381331
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janet.ryles@dbh-nhs.uk
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Carers
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Local Doncaster Partnership for Carers offers support and information to carers of all ages, including a specialist Young Carers support group.
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Doncaster Partnership for Carers
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74 Church Lane Cantley Doncaster DN4 6QD
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(01302) 530642
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dpfc@carers.net
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Barnado's Young Carers Service
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63a Warmsworth Road Balby Doncaster DN4 0RP
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(01302) 858697
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SNAPS (Special Needs All Persons Supported) is a group that offers help, support, a chance to relax and a place for children to play. It is open to all family members who are caring for children with any type of disability. It is run on a drop-in basis and meets on the last Friday of every month from 1pm - 3pm at the Bentley Baptist Church.
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(01302) 821020
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National
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Young Carers Initiative (National)
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All enquiries should be submitted online at: www.youngcarer.com
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Carers UK
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20-25 Glasshouse Yard London EC1A 4JT
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020 7490 8818 (General Enquiries), 0808 808 7777 (Carers Line)
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info@carersuk.org
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www.carersuk.org (Also see section 8.1)
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The Princess Royal Trust for Carers
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142 Minories London EC3N 1LB
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020 7480 7788
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help@carers.org or youngcarers@carers.org
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www.youngcarer.net
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Cerebral Palsy
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National
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Scope PO Box 833 Milton Keynes MK12 5NY
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0808 800 3333
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cphelpline@scope.org.uk
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www.scope.org.uk (Also see sections 3.1, 6.1 & 8.1)
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Local
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Scope Doncaster The Haven Glen Road Branton Doncaster DN3 3NN
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Charcot Marie Tooth Disease
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(Hereditary Motor & Sensory Neuropathy or Peroneal Muscular Atrophy)
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National
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CMT United Kingdom PO Box 5089 Christchurch Hampshire BH23 2WJ
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0870 7744 314
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secretary@cmt.org.uk
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www.cmt.org.uk
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Conductive Education
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Conductive Education is a major breakthrough in the well-being of children and adults with motor disorders and their families. Provides services for those with physical disabilities (cerebral palsy, dyspraxia, stroke, parkinson's, mulitple sclerosis & head injuries). Short and block placements. Training for professionals. For more information contact:
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The National Institute of Conductive Education
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Cannon Hill House Russell Road Birmingham B13 8RD
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(0121) 449 1569
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foundation@conductive-education.org.uk
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www.conductive-education.org.uk
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Cystic Fibrosis
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National
|
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Cystic Fibrosis Trust 11 London Road Bromley Kent BR1 1BY
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020 8464 7211
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www.cftrust.org.uk
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Deafblindness
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National
|
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National Centre for Deafblindness Maureen Jobson Cygnet Road Hampton Peterborough PE7 8FD
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Voice and text: (01733) 358100. Text: (01733) 358358
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(01733) 358356
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www.deafblind.org.uk
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| |
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Sense 11-13 Clifton Terrace Finsbury Park London N4 3SR
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Voice: 020 7272 7774 Text: 020 7272 9648
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020 7272 6012
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enquiries@sense.org.uk
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www.sense.org.uk
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Deafness
|
| |
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National
|
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British Deaf Association 1-3 Worship Street London EC2A 2AB
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Text phone: 0800 6522 965. Voice Phone: 0870 770 3300. Videophone: 020 7496 9539
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www.signcommunity.org.uk
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National Deaf Children's Society 15 Dufferin Street London EC1Y 8UR
|
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Information & Helpline: 0808 800 8880 (voice or text) or 020 7490 8656
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020 7251 5020
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helpline@ndcs.org.uk
|
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www.ndcs.org.uk
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Diabetes
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| |
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National
|
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Diabetes UK 10 Parkway London NW1 7AA
|
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Careline: 0845 120 2960
|
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careline@diabetes.org.uk
|
|
www.diabetes.org.uk
|
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| |
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Juvenile Diabetes Research Foundation 19 Angel Gate City Road London EC1V 2PT
|
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020 7713 2030
|
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info@jdrf.org.uk
|
|
www.jdrf.org.uk
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Down's Syndrome
|
| |
|
National
|
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Down's Syndrome Association Langdon Down Centre 2a Langdon Park Teddington TW11 9PS
|
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0845 230 0373
|
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0845 230 0373
|
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info@downs-syndrome.org.uk
|
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www.downs-syndrome.org.uk
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|
Local Friday Opportunity Group (FROG) is run by the Early Years Service and families need to be referred by a professional (social worker, paediatrician, etc) to the Pre-school Inclusion Team.
|
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FROG Early Years Service Richmond Hill Melton Road Sprotbrough Doncaster
|
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01302 862103
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(Also see section 1.8)
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Dyslexia/Dyspraxia
|
| |
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National
|
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British Dyslexia Association 98 London Road Reading RG1 5AU
|
|
Helpline: 0118 966 8271
|
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helpline@bdadyslexia.org.uk
|
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www.bdadyslexia.org.uk
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| |
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Dyspraxia Foundation 8 West Alley Hitchin Hertfordshire SG5 1EG
|
|
Helpline: 01462 454986 (Monday - Friday, 10am - 2pm)
|
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01462 455052
|
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dyspraxia@dyspraxiafoundation.org.uk
|
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www.dyspraxiafoundation.org.uk (Also see section 2.1)
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Local
|
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Doncaster Centre for Basic Skills and Dyslexia 17a Nether Hall Road Doncaster DN1 2PH
|
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01302 769656 / 810200
|
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info@doncastercentre.co.uk
|
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www.doncastercentre.co.uk
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Epilepsy
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| |
|
National
|
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Epilepsy Action (The working name for the British Epilepsy Association) New Anstey House Gate Way Drive Yeadon Leeds LS19 7XY
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Freephone helpline: 0808 800 5050
|
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Free fax helpline: 0808 800 5555
|
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helpline@epilepsy.org.uk
|
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www.epilepsy.org.uk
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| |
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National Society for Epilepsy Chesham Lane Chalfont St Peter Bucks SL9 0RJ
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Helpline: 01494 601 1400
|
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www.epilepsynse.org.uk
|
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| |
|
Matthews Friends is a charity that promotes, advises and supports parents and professionals in the use of the ketogenic diet as a treatment for drug resistant epilepsy.
|
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Matthews Friends PO Box 191 Oxted Surrey RH8 0WL
|
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07884 054811
|
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enq@matthewsfriends.org
|
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www.matthewsfriends.org
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Local
|
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Epilepsy Action (Doncaster Branch) Ms Irene Beevers 26 Sherwood Avenue Scawsby Doncaster DN5 8QN
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(01302) 783599
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Genetics
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| |
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National The Genetic Interest Group supports children, families and individuals affected by genetic disorders or genetic diseases.
|
|
Genetic Interest Group Unit 4D Leroy House 436 Essex Road London N1 3QP
|
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020 7704 3141
|
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020 7359 1447
|
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mail@gig.org.uk
|
|
www.gig.org.uk
|
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| |
|
Unique (Rare Chromosome Disorder Support Group) PO Box 2189 Caterham CR3 5GN
|
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01833 330766
|
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info@rarechromo.org
|
|
www.rarechromo.org
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Heart
|
| |
|
National
|
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British Heart Foundation 14 Fitzhardinge Street London W1H 6DH
|
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Heart Information Line: 0870 600 6566 or 020 7935 0185
|
|
www.bhf.org.uk
|
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| |
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Children's Heart Federation 52 Kennington Oval London SE11 5SW
|
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Helpline: 0808 808 5000 or 020 7820 8517
|
|
jennae@chfed.org.uk
|
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www.childrens-heart-fed.org.uk
|
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| |
|
The Grown Up Congenital Heart Patients Association - for adults and teenagers born with congenital heart defects:
|
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GUCH Patients Association 75 Tuddenham Avenue Ipswich Suffolk IP4 2HG
|
|
0800 854759
|
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www.guch.org.uk
|
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| |
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Heartline Association Community Link Surrey Heath House Knoll Road Camberley Surrey GU15 3HH
|
|
(01276) 707636
|
|
admin@heartline.org.uk
|
|
www.heartline.org.uk
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Hospice
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| |
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Bluebell Wood Children's Hospice is a voluntary service which provides a package of care to children with life limiting/life threatening conditions and their families who are resident in the South Yorkshire, North East Derbyshire, North Nottinghamshire and some parts of North Lincolnshire area. These children are unlikely to reach adulthood and Bluebell Wood provides a complimentary service working along with other agencies. We can provide practical and emotional support, respite care, sibling support, social activities, palliative care, end of life care, and on-going bereavement support at home and also at the hospice. The Team Leader for the Doncaster area is Katie Ward and you can contact her on: 07795 517085 or the Head of Care is Lynda Lee on: 07776 142698.
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Bluebell Wood Children's Hospice
|
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Cramfit Road Anston Sheffield S25 4AY
|
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(01909) 568135
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www.bluebellwood.org
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Kidney
|
| |
|
|
| |
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National Kidney Federation 6 Stanley Street Worksop Nottinghamshire S81 7HX
|
|
(01909) 487795
|
|
www.kidney.org.uk
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Learning Disability
|
| |
|
National
|
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MENCAP 123 Golden Lane London EC1Y 0RT
|
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Learning Disability Helpline: 0808 808 1111
|
|
Minicom: 0808 808 8181
|
|
help@mencap.org.uk
|
|
www.mencap.org.uk (Also see sections 8.1 & 9.2)
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| |
|
|
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Mencap 4 Swan Courtyard Coventry Road Birmingham B26 1BU
|
|
0121 707 7877
|
|
help@mencap.org.uk
|
|
www.mencap.org
|
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| |
|
Local
|
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Doncaster Mencap 95 Thorne Road Doncaster DN1 2JT
|
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01302 360617
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Sight
|
| |
|
National
|
|
Royal National Institute of the Blind (RNIB) 105 Judd Street London WC1H 9NE
|
|
0845 766 9999
|
|
020 7388 2034
|
|
helpline@rnib.org.uk
|
|
www.rnib.org.uk You can also request a catalogue of toys specifically designed for blind and partially sighted children. (Also see section 3.4)
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| |
|
Local
|
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Partially Sighted Society PO Box 322 Doncaster DN1 2XA
|
|
(01302) 323132
|
|
(01302) 368998
|
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Spina Bifida
|
| |
|
National
|
|
Association for Spina Bifida and Hydrocephalus 42 Park Road Peterborough PE1 2UQ
|
|
(01733) 555988
|
|
(01733) 555985
|
|
info@asbah.org
|
|
www.asbah.org
|
|
| |
|
Or:
|
|
Association for Spina Bifida and Hydrocephalus Northern Region Office ASBAH House North 64 Bagley Lane Farsley Leeds LS28 5LY
|
|
0113 255 6767
|
|
nro@asbah.org
|
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Spinal Muscular Atrophy
|
| |
|
National
|
|
The Jennifer Trust for Spinal Muscular Atrophy Elta House Birmingham Road Stratford-upon-Avon Warwickshire CV37 0AQ
|
|
0870 774 3651
|
|
0870 774 3652
|
|
jennifer@jtsma.org.uk
|
|
www.jtsma.org.uk
|
|
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"Get as much information as you can. If you are well-informed, you can ask the right questions." |
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