Doncaster Council hears the voice of people with Motor Neurone Disease

Today, Councillor Rachael Blake has signed the Motor Neurone Disease (MND) Charter, recognising the importance of supporting Doncaster residents affected by the fatal disease.

Developed by the Motor Neurone Disease Association, the Charter is a statement of the respect, care and support that people living with MND and their carers deserve and should expect.

MND is a fatal, rapidly progressing disease that affects the brain and spinal cord. It can affect up to 5,000 adults at any one time and on average six people are diagnosed every day, with the same number losing their lives each and every day.

The Charter focuses on five key points of:

  • the right to an early diagnosis and information
  • the right to access quality care and treatments
  • the right to be treated as individuals and with dignity and respect
  • the right to maximise their quality of life
  • carers of people with MND have the right to be valued, respected, listened to and supported.

Local resident Valerie Wood has cared for her husband who was diagnosed with MND in 2012. She said: “It is excellent that Doncaster Council have taken this first step of signing the Charter. MND has a huge impact on both the person affected and their family/carers and it is vital that work continues to diagnose the condition as soon as possible.”

Councillor Rachael Blake, Doncaster Council Cabinet Member for Adult Social Care and Chair of the Health and Wellbeing Board, said: “It is vital that all our residents who have MND and their families know about the support and services that are available in Doncaster. By signing this charter, Doncaster Council and the wider partners in the Doncaster Growing Together Partnership are demonstrating our support to ensure people living with this devastating disease can maximise their quality of life, by having the right information, support and care services and treated as individuals with dignity and respect.”

Chris James, Director of External Affairs for the MND Association said “The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time, as set out in our Charter, can transform lives.”

  • Category: Health & wellbeing
Last updated: 05 July 2018 17:23:49